World Down Syndrome Day 2015

World Down Syndrome Day. March 21- 3/21-  a day picked to represent trisomy 21 or three of the 21st chromosomes (most of us have only 2- the third is what is responsible for what we know as Down Syndrome).  It’s a … Continue reading

Parallels between the babyloss and Down Syndrome Communities

This was her first visit in the office since we converted to electronic medical records. Even though I always review a patients medical history when they come in, I pay extra attention when it’s someone’s first visit since the transition. … Continue reading

My three P’s of grief survival

This week I had the honor of being the guest speaker at a local hospital’s night of remembrance- an event they put on for those who lost babies. It was a beautiful ceremony, with music, poetry and a touching sand … Continue reading

Bravery

Sometimes I need to be reminded that I’ve done some hard things. I have survived. I am brave. I am brave because…. I hung up the phone, the news of a Down Syndrome diagnosis for my baby still ringing fresh … Continue reading

Wouldn’t it be great if it did

I finished ” When Breath Becomes Air” not too long ago. The book is memoir by my friend Paul.  Paul was sick- diagnosed with terminal lung cancer at age 36.  He and his wife Lucy were debating whether or not to have a … Continue reading

My testaments

I was recently introduced to this video. http://www.huffingtonpost.com/entry/dad-breaks-down-in-tears-explaining-what-he-knows-about-down-syndrome_us_56cddfd6e4b0928f5a6df16e It spoke to me on man levels. There is the obvious reason- it’s about Down Syndrome.  But there is a more subtle reason- it’s about a parent wanting to speak up for … Continue reading

Mothers of Louise

http://www.buzzfeed.com/krishrach/a-mom-shared-the-annoying-things-said-about-her-daughter-wit I am a “mother of Louise.” A silent one, perhaps, because I only experienced such comments while pregnant (and yes, I really did), knowingly carrying a child with Down Syndrome.  The comments are real and I’m sure would have … Continue reading