I was a bit nervous as I approached the park. Chris was called into work last minute on a Sunday, so it was just me and Muppet. I had never done the March of Dimes before. Strange, I suppose, when you think of my line of work. One would think that I might be a yearly walker, especially because the labor and birth unit at my hospital puts together a team annually. Honestly I probably wouldn’t have gone this year either, with my walk attention and fundraising efforts elsewhere, but the L&B team decided to walk this year in memory of Mabel. I was so touched. They had shirts made- orange for my karate carrot- with her name and a little carrot on the back.
Even though it was an honor to have my daughter the focus of their team efforts, I was still nervous because it was the March of Dimes. My first thought is of all the preemies who make it out of the NICU- the success stories. The “sung” heroes- the poster children for why giving to the March of Dimes matters. See what your money can do, it saved this baby’s life. My baby was one of the unsung heroes- one who never saw outside the wires and beeping of a NICU room. But she was her own success. We knew she might not (likely not) graduate from the NICU, but we got what we had hoped for. When we were told our baby had a likely life limiting diagnosis, my hopes for her changed. Once hoping she would simply be a high functioning child with Down Syndrome who needed no surgery, the preterm oligohydramnios diagnosis changed my hopes- I hoped that she would survive pregnancy so I could meet her in person; I hoped she wouldn’t suffer; I hoped her case would be clear, so we wouldn’t have to make any extremely difficult decisions; I hoped she wouldn’t die alone. My hopes were met- she lived, which was her own making! Mabel’s NICU team helped with the other hopes- giving her pain medication so she wouldn’t suffer and keeping us informed about her prognosis so we could make those “simple” difficult decisions. The NICU couldn’t save her- her body wasn’t meant for this world with its current technology- but it gave us control, comfort and memories. Though Mabel didn’t survive, she is still a poster child for the NICU- exactly why people should donate to the March of Dimes, so that some day, a baby like Mabel would have a chance.
Did any of you participate in the March of Dimes? Or other walks/fundraisers/awareness events?